Love, Your Institutionalized Mother

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Dear Maya & Devika,

Though I am not yet in a straight jacket, dictating this blog entry or typing with my toes.. nor am I creating this entry from the depths of a rehab facility.. I look at these future possible situations with a feeling of resignation and possibly a little anticipation.  
A nice, clean-white!, cozy room with upholstered walls.. and silence?  Hmm.. sounds quite spa-like to me at the moment!


If you girls are ever wondering - hm, what happened to mom?  If you are ever looking at pictures of mama prior to raising children and think, 'wow - mom looked so nice!  Clean clothes with no wrinkles (btw I was once a wrinke-phobe).. perfectly coiffed hair.. a relaxed smile on her face..' - well, today is one of those days that made the 'me-of-the-past' recede even further into the cobwebby-recesses of my memory.


Let's just take a little walk through our day together, and remember these special moments, shall we? :


12:00 am:  I fall asleep after being very worried about my brother, who is in a Chicago hospital with a major infection in his surgical incision area.  HIs jaw was reconstructed 2 wks ago (that's a long story - totally bizarre disease he has which has only ~138 known cases worldwide - most of them in Asia.  Caused a cancer-like issue that ate away at his jaw.  Had to be replaced w/a metal jaw and now reconstructed using bone from his hip.  Owch.).


12:30 am:  Maya appears at my bedside, ~2" from my face and frightens me awake.  I walk her back upstairs to her bed.

3:45 am:  Maya appears at my bedside, ~2" from my face and frightens me awake.  I walk her back upstairs to her bed.

5:30 am:  Maya appears at my bedside, ~2" from my face and frightens me awake.  I walk her back upstairs to her bed.

6:10 am:  My alarm sadly awakens me from the partial sleep I had fallen back into.

8:40 am:  Maya and I are dropping Devika at her first day of preschool.  We are standing outside in a crowd of moms, dads, and grandparents (most kids seem to have extended families present plus video and still cameras to immortalize this moment.  No camera in MY hand.. for I know what is coming!), waiting for the preschool teachers to open the doors, have us sign the kids in, and then lead them from us into the classroom.

8:41 am:   Devika yells, "Mommy!  I TOOTED!!"
8:41:10 am:   Devika yells, "I TOOTED!  I TOOTED!!"
8:41:20 am:   Devika yells, "Mommy!  I talking to you!  I TOOTED!!  I TOOTED!!" 

8:45 am:  Teachers open the door and Devi realizes she now has to part from me.  She proceeds to melt down completely.  A look of terror appears on her face - she begins screaming and crying and running for me.  I pick her up and hand her to one of the teachers, trying to avoid the torrent of kicks and clawing of hands at my clothing.  "Bye-bye Devika!  You will have a fun day at school!  I love you!"  
8:45:10:  I maneuver myself and Maya thru the crowd of staring parents/grandparent/wide-eyed children.. smiling slightly and looking nonchalant.   Just wait, I think, for this to happen EVERY morning for lord-knows-how-many-months.  

9:30:  Maya and I are in Target, picking up a new booster carseat for her (the airline lost HALF of her booster seat in-transit a couple weeks ago).  We stop in the restroom.  I go into the stall and Maya asks to remain outside the door.  
Maya:  'are you ok in there honey?'   Me:  'I'm fine, thank you'
Maya then launches into one of her imagination games (as always.. and I do mean always).  Not sure what today's scenerio was exactly, but she was talking to an imaginery person and saying, 
"She isn't here yet, she is practicing her pole-dancing"
WHAT?
I note that there is one other woman in a stall.  All is silent other than Maya's non-stop chatter to her imaginery friend.  "She will be here soon, she WANTS to be here.. but she is pole-dancing.  She has to work on her pole-dancing."
She continues to say 'pole-dancing' at least 10x before I manage to flush and get out the stall door.  I ask her what she is talking about.. and just then the other occupied stall door opens and .. it is the mom of a girl that Maya went to school with last year.  
But of course it is, right?

3:30 pm:  Devika has an appmt at the pediatrician to have her left ear flushed.  She failed a hearing test in that ear a few weeks ago.  Turned out that it did have a good amt of wax build-up, which was covering the entire eardrum.  She did NOT like the flushing.  She might only weigh 20 lbs (actually 20.5 as of today).. but WOW.  She is strong!!  Small but mighty!!  She freaked out completely.  I seriously had to almost lay on top of her in order to hold her legs, arms, and head down.  She was kicking and twisting, etc.  And SCREAMING.  'I SCARED!!' and then just blood-curdling screams.  Like we were pulling out her fingernails or something!  It was hoooorrible.  
I understand that she did not quite understand what was happening, and it WAS scary for her.  I felt so bad!  Nothing I said or did would help her.  And it seemed to take forever for the nurse to flush it!  Meanwhile, Devi - the nurse- and I were all soaked in the peroxide/water mixture.  Lovely.
I would imagine that any child in that office was completely terrorized and traumatized by her today!  Not to mention Maya.  Poor thing was so upset by how upset Devika became, that she was bawling her head off.  I had to ask the nurse to let her sit outside the door with some books.  It helped only a little.  :(

So my dear little daughters.. much as I love you, you do cause me extra trips to the hair stylist to cover my ever-growing amount of gray hair.  You have caused me to give up my ironing and become one with my wrinkle-y clothes.  You have led to increased revenue at the local wine shoppe, which must be nice for them with the current economic conditions.


If you are bothered by the fact that someday you are forced to visit me inside an institution.. please remember why I am there, and know that I am probably enjoying myself.  

Much Love,  Mommy 






Get Shopping!

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Maya (playing 'heart doctor'): Devi, we are going to activate your medicine. 

Devi: What?       

Mommy: I think Devi does not understand what you are saying.

Maya: Ok Devi, I mean we are going to acknowledge that you are sick. You have nitro-arelekalites in your stomach. You need an enema.

I so enjoy my daughter's expandng vocabulary and imagination!  Though I can say for sure that I would not want to be her patient in this game!

*********************************************************************************************

A few products that I feel the need to promote today:

GAP 1969 Super Skinny Jeans for girls 

www.gap.com/browse/product.do?cid=21235&vid=1&pid=762719  

O M G!  Super happy day when we discovered these.  Maya and I went school clothes shopping, and every pair of pants and pant-like-leggings at all of the stores were much too large for her.  Finally we pop into GAP.. and there they are.  Big display just inside the store:  SUPER SKINNY 1969 JEAN

I thought, hmm.. too good to be true?  We tried the jeans on - and - lo and behold!  They FIT!!  The legs fit perfectly, the butt didn't sag, and I only needed to adjust the waist a couple of button settings!!  WOW!  

If you have a skinny-skinny kiddo, you absolutely need to check these out immediately.  They are $29.50 each, but are currently buy one, get the 2nd for $10.  PLUS you will get a card (don't forget to request one, they seem to 'forget' this promo) to have stamped for each full-price pair that you purchase.  After purchasing 4 pair, you get the 5th for free!  The card promo is good through July of 2011.

My Creations - Personalized stories for unique families  

www.mycreationsbooks.com

Ok, I might be promoting this item a bit early, as I do not have an actual book in my hand.  I think that the web gallery of the books is adorable however, and I cannot wait to get the book I recently ordered for Devika!  I wanted it for her b-day, but it won't be here on time.  Oh well, she really doesn't understand the birthday concept yet anyhow.  She just knows that birthday = Barney cake.  :)  {yikes.. better get that cake ordered!!}

Anyhow, check this out!  I love how the books are made with cute cartoon people, and are personalized according to your family's situation.  I love how they have categories for domestic adoption (open and closed), international adoption, IVF, surrogate, etc.  Very very cool way to continue open discussion with your young child about the way your family was created.  Also a fun gift - I purchased a gift certificate for a friend who recently adopted a baby.

Custom Adoption Films - Oh and while we are plugging adoption-related items, don't forget that my photography and film-creation business creates adoption-story custom films!  My kids LOVE to watch their films.  It's another great way to share their story with them and with other friends/family members.  Check out my website for samples: 

www.AKFilmCreation.com


 


I Write Like

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According to 'I Write Like' (www.IWL.com), my blogging style of writing is that of David Foster Wallace.  Ok, pathetically, I do not know what David Foster Wallace has written.   My style is like his?  Poor guy..   ;)  Fun website though - if you blog or write, you should check it out.
I Googled Mr Wallace, and I have to say that I might like his writing.. just from the titles of his books!  'Brief Interviews with Hideous Men', Consider the Lobster and Other Essays, 'A Supposedly Fun Thing I'll Never Do Again: Essays and Arguments'

Sadly, Mr Wallace committed suicide in 2008.  Criminy.. the places you find yourself while surfing.  Now I'm a bit sad about some guy that I had never heard of 10 minutes ago.  What a tangled web the internet weaves. 

Constant Entertainment ..and Trauma

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Ah the cuteness..
For some reason, every time I drive through a woodsy/high foliage area these days, Devi will yell:
"Watch for tiger paws!!"     
?  I have no idea where this came from.  A cartoon maybe?  But it is quite funny when you are used to being around her and not hearing her come up with imaginative or random thoughts - she usually only repeats people, screams 'NO!', or asks simple 2-4 word questions.  Anyhow, this always results in huge giggles and continued alerts from both girls until we are out of the area.  Funny!

I've been sick all week with a cold/sore throat - and someone in Maya's class has confirmed strep throat.
Maya:  "Mommy, I sure hope that you don't have Shrek throat!"       Hee..  me neither!

Maya:  "Mommy, could I have some cotton slobs please?"

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Devika had a run-in with a rubber band today.  I turned away from her in the kitchen for 20 seconds to grab a ringing phone.. suddenly I hear screams and this is what I see:
After watching the welts appear and not seeing anything she could have hurt herself on or with - I am freaking out!  Finally I figure out she keeps yelling 'Foot!  Foot!' and holding up her foot.  Then I notice a small rubber band under the cabinet.  Obviously she put the rubber band around her foot and it flipped off into her face.
This kid could injure herself in a feather bed I think!  Poor boo!

To Everyone Who Complains That I Never Answer My Phone:

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Social Stories

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Have you ever heard of 'social stories'?

I had never heard of these until a recent visit we had with a behavioral specialist - discussing Devika's challenging behaviors.  One of the worst problems that I currently have with Devi is her ability to calm down when I put her to bed - nap and bedtime.  She is having horrible separation anxiety with me.  {And actually, this behavior is the same that she exhibits when left with a sitter or had been when she was dropped at preschool.  The weighted blanket worked for awhile with this, but hasn't been working lately.}

Every time that I put her to bed, we follow the same exact routine.  Unfortunately, it does not seem to matter to her.  When I am getting ready to lay her down, she starts repeating 'mommy? mommy? mommy?...I wake up? I wake up? I wake up?..' over and over.  When I begin moving away from her crib, she FREAKS out immediately.  Screams like she is being tortured and jumps up and down.  This only lasts for maybe 5 minutes (and if she is very tired, it lasts maybe 2-3 minutes).. but it is horrible!!  I know it is short-lived, but the girl acts completely terrorized.  This is not the normal 'don't leave me' cry.. we've seen that with both girls.  This is an all-out freakout.  If she isn't tired, this can last for ~10-15 minutes.
I'm mostly afraid that Devi will hurt herself with these fits.  Afraid she will bang her head or go flying out of the crib.  She jumps sooo high.  Poor thing.. I just can't find anything that will help her remain calm.  The only thing that helps is if Aj is home.  If he is here, he can put her down and she will not freak out like this.

So - the behavior analyst told us to try creating a 'social story' book and read it to her every night.  I was told to write out Devi's bedtime routine like a story with pictures of her in it (she is very visual), and add it to her nightly routine.  Or let her read it at other times also.  
I have put one together and am having it printed through Blurb.com (luv them btw).  I so hope this helps.  :(  We've been dealing with these anxiety issues for a couple of months now and it is just painful.  It also upsets Maya quite a bit and then I have to help calm HER down.

Once I began working on the book, I googled 'social stories' and found a ton of information.  These stories are an important tool in helping autistic children (well, not just children I guess, but any person having an autism spectrum disorder) interpret certain types of situations (social situations, etc).  
There are actually specifically designed styles and formats that should be used when creating one of these stories, though I did not actually follow the model very closely.  If I find the need to create others in the future, I will probably do so. 

You can check out my book through the following widget/link. 

*If you are interested in further info, you might want to check out this site (Carol Gray created the concept):  http://www.thegraycenter.org/social-stories .


One of 'Those Moms' ..Again

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Sex In The City 2.. I have one word:
"Cheeeeesey".
Bleh. 
I spent most of the (much too long) movie being embarrassed for my girls.  And I LUV my SITC girls!  But alas, this movie was a bomb.

There was one bit of the movie, however, that rang-in near and dear to the hearts of both myself and the friend who joined me at the theater.  If you saw the movie, I am referring to the two scenes that dealt with Charlotte and her mommy-meltdowns. 

The first scene depicted a meltdown.  Charlotte was (wtf?!) making a gazillion pink-frosted cupcakes in her white kitchen.  Wearing a WHITE dress mind you.  An expensive, vintage white dress.  She was trying to talk on the phone at the same time.. and manage her two small children.  Needless to say, one child screamed incessantly the entire time {hmmm.. now THAT sounds familiar..} while the other got into the red food coloring and ended up making a huge red/pink mess - including red handprints on the butt of her mom's white vintage dress. 

OK, so there are so many things wrong with that scene - so many 'um - no - {freaking} - way' - things wrong with that scene.. that the scene looked like something out of a 'Count how many things are not right in this picture' child's game.

Where I am going with this, however, is into the pantry with Charlotte.  After the 'handprints' incident, mommy had to get away for a moment.  Time-out for mommy in the pantry.. as Charlotte dissolved into tears.  Now THIS I can relate to!  Not that I have cried in the closet..
yet..
but this could occur at any time. 

Mommy is stressed today!!  This job, my friends, is not for the faint-of-heart.  If you are childless and out there scoffing at harried-looking moms being screamed at in public venues by ungodly-loud toddlers.. if you are thinking (ok, I used to be this person!)..
'Good god woman - get a grip on your kids!!'..
well..  I don't blame you.  And I hope you are never in my shoes.

Seriously.. my almost-3-yr old daughter is starting to worry me.  At any time now, I expect her head to start whipping around in circles and pea-soup to spray across the room. 

So I guess maybe we are in the midst of the 'Terrible Two's and Three's'.  Add in the fact that Devika has sensory processing issues and likely will be diagnosed with ADHD (according to her OT).. and you might start to understand why mommy needs to ensure she is stocked up on wine prior to hubby traveling during the week!!  Good god, I can't imagine the havoc this child could create at a liquor store full of glass bottles.  {Someone needs to start a delivery service that focuses on evening-mommy-needs.  Wine runs, decent take-out food, anti-anxiety medications.  ;) }
 
I made the HUGE mistake this evening of stopping at Target with my girls, in order to pick up a pair of shoes for Maya.  It was 5 pm.. just before dinnertime.  Obviously not a good idea.  The entire time we were in the store - there might have been 5 minutes of not hearing Devika screaming 'NOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOO!'.  And that 5 minutes occurred when I let her out of the cart and she took off sprinting down the aisles at full-speed.  Honestly, that girl is FAST.  She hit the ground running and did not even hesitate at the end of the aisle - just kept flying around the corner and down the next aisle, where I was able to intercept her. 
'NOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOO!!!'
o m g.  Somehow I maintained myself (outwardly) and simply placed her (took a few minutes of corralling the kicking legs and flailing arms) back in the cart.  I ignored her tantrums and calmly helped Maya select her shoes.  Continued ignoring as we left the store and drove home.  I'm not even sure - I think she stopped yelling prior to check-out - but could be that my brain simply shut-down.

That is just a glimpse into my life as-of-late.  Devika is with me 24/7 now, as we had to pull her out of her preschool/day-care.  While I seriously do enjoy spending more time with her and having more 1:1 time, I am finding it a little challenging to change my mental focus.  I had been very involved and excited about some work-related opportunities and marketing avenues that I was embarking on.. but those have to go on the backburner.   I'm also not going to take more classes this upcoming school year.  Full dedication needed to getting the family life running smoothly and helping Devi adjust/etc.
I am still in the 'new' phase of adjusting to 100% full-time mom.  I need to get better at not being anxious about the non-mom things in my life and focus.  I'm getting there.
Maybe the ADD isn't Devi's issue.. ha!  

So our babysitter now refuses to sit for us, as she is afraid of Devi's tantrums and doesn't know how to handle them.  I do have a new sitter, but she is only available on day/wk for a few hours. 
Needless to say, I'm having to get used to not working much at all.  No way that I can take care of this child and work.  She sleeps well at night, but I am so exhausted by the end of the days that I cannot even focus on anything past 9 pm. 
Luckily D does not melt down too badly if she is given a constant change of activity and is 1:1 with me.  Gymnastics class is great for her - 45 minutes of constantly changing physical activities (only 2 tantrums in todays class).  She also loves water, so I let her play in a baby pool with some barbies today - big hit.  Very warm weather is my friend.

Ok I guess this sounds like a very whiney post, but .. well.. ok maybe it is.  :)  Long day. 
And don't get me wrong here.. (though I'm sure anyone who is a parent will understand).. I luv this kid to death!!  She is amazing, hilarious, incredibly loving (after she beats you over the head of course!), and has an infectious smile.  These issues are not her fault.. it is just up to her parents to help her figure out how to work past them.

Luckily our OT brought us a behavioral analyst last week and I am working on some ideas to try to help some of these tantrum-y issues.  Nothing working yet, but it is too soon.  I haven't finished all of my 'photo-taking' to create visual help for Devi.  She responds well to visual cues, so I am working on addressing many of her meltdown-triggers with photo-cards.  We will see how it goes.
If these ideas do not help, our OT has suggested that we seek further help for D.  She has given me a few names and numbers. 
Devi has also qualified for the special preschool service, so she will be starting that in early August.  Hopefully that will be helpful. 
In the meantime..  thank god for Maya being in a good phase, chik-lit audiobooks that make me laugh, and the fact that we have a pool so that I can swim on the days I cannot run.  Running sooo helps to keep my mood balanced.  Just can't run when Aj travels.  Thankfully he has started a new job/new company where his traveling should be much lighter.  Let's hope! 

If not, you might just look for me in the pantry.  :)